On the gripping eyeball

[perlmonger]

Third visit to the Eye Hospital this afternoon, and the first actual scheduled appointment. Nothing new, really: they did a field test, the results of which showed that my right eyesight is still as bad as I feared, not as recovered as I’d hoped. I guess I’m doing a lot of extra post-processing ATM, which would explain the low framerate and interspersed random photoshop filter effects that I’m seeing.

The antipodean chap I saw after the tests didn’t really say anything new; not a lot they can say or do until after the MRI scan on Friday week provides some sort of data. He seems to be a β-interferon fan for early-stage MS, if that’s what I actually have, but beyond saying that it’s an expensive drug (no sher!), he didn’t offer any odds on actually getting it on the NHS, even should I have the disease and then choose to pursue that option. All a bit premature, really.

So. Another positive experience overall (in on time, out early, no crap from or with anyone I dealt with); I emerged with another appointment being processed for three weeks hence. We’ll see how the radiology dept. at BRI proper compares next week.

Comments

[ccomley.livejournal.com]

BI is about £10k per year. And that's at current consumption levels. It's a blood-product so if use goes up, so does cost.

NICE say it's not to be used as a preventative - once you're "really" diagnosed with MS they will let you get it on the NHS if your local HA has the budget for it.

So I hope that's not where you're at. Fingers crossed.

[budleysalterton.livejournal.com]

<upbeat> at least it's not obviously worse </upbeat>

It's difficult to know what to say. I found the worst part about my various non-impact related body failures is that although I knew what the symptoms were the cause was always described as "might be, could possibly be". All I could do was keep as upbeat as possible whilst continuing to log the details of the symptoms.

Anyway, tentacles continue to be crossed for the most optimistic outcome.

[captainblue.livejournal.com]

So are they merely discussing MS or taking it as read it's happening?

[perlmonger.livejournal.com]

Covering the bases, I think: the odds are in my favour, but they're not as long as I'd like.

[purple-peril.livejournal.com]

All this waiting around must be maddening.
Let's hope the MRI at least gives you something more definite one way or another.

[pickledginger.livejournal.com]

I'm delighted to hear it doesn't appear to be worsening ~ and even more delighted to learn you'll be going in for an MRI. May they find the problem, and may it be both minor and readily reparable.